Showing posts with label musings. Show all posts
Showing posts with label musings. Show all posts

Wednesday, 1 June 2011

Spoon theory

I feel bad that yet again I've not posted in a while, but with revision, exams, wedding prep and more volunteer trouble, I just haven't had the "spoons" to be able to write anything.

"What are spoons?" I hear you ask?

I touched on this briefly early on in my blogging 'career' in my post about defining tiredness but I guess now is a good time to go into it in more detail.

The term "spoons" comes from Christine Miserandino's Spoon Theory in which she talks about her life with Lupus; you should definitely check out this link if you haven't already, it's very insightful and puts into words what a lot of people with chronic disability go through everyday.


For me, I do have to ration my "spoons" to make sure I make it through the day. Even getting a shower, sitting in my wheelchair too long, or just wearing uncomfortable clothes uses up spoons I could be using to go out, read a book, write a blog or any of the other things I enjoy doing. It's definitely a balancing act between making the most of opportunities that come up and enjoying life and making sure that I keep well. For me, if I use up my spoons, or overspend one day then I pay for it with next day's spoons, meaning I'm completely exhausted. Conversely, if I know I have a spoon-intensive day coming up, I'll try and save some up in the days before.


I hope this gives you an insight into my life a little, it's sometimes difficult to explain these things, but I hope I've done it justice. Thanks to Emily Ruth for inspiring today's post; she's also talked about spoon theory from her perspective today, it's a really interesting post and definitely worth a spoon to read it! :)

Monday, 16 May 2011

Musings...

Alone
Surrounded by a sea of faces
Who stare at me
Judge me
Pity me
Before they even know my name

Why don't they reach out
Smile
Look like they understand
See the real me
Not the wheelchair
Not the disabled body

Just me

(Sorry, I am horrifically bad at poetry!)
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